As scientific researchers work to uncover what specific genetic sequences of the human genome mean, the largest challenge may be the one facing us -- how to live with this new genetic information. How much would you want to know? What choices would you make? Whom would you want to have access to your personal genetic profile?
From ethical dilemmas that cut to the heart of personal relationships to practical consequences that can determine life choices, Who Gets to Know? offers a compelling discourse on the far-reaching ethical, social, legal, and economic implications of genetic testing. Reflecting on how genetic testing may affect her health insurance, Congresswoman Louise Slaughter says, "I really feel that this is the greatest science and the potential is so wonderful and so marvelous. I\'m just afraid of the consequences."
Funders: The Robert Wood Johnson Foundation; the Josiah Macy, Jr. Foundation; the National Human Genome Research Institute; the National Science Foundation; the Alfred P. Sloan Foundation; and the U.S. Department of Energy Office of Science